Shire is just accessing the number of your connections in the profile and will not save any personal information.
An estimated 350 million people worldwide suffer from rare diseases — nearly one in 20 global citizens. If all of the people with a rare disease lived in one country, it would be the world’s 3rd-most populous country.**
Sharing your Rare Count makes a difference.
Select a network to find out how many people in your life could be living with a rare disease, and then share your results. It’s a simple but powerful way to raise awareness of the magnitude of rare diseases and to become a powerful champion for those living with one.
For every person who participates, Shire will contribute $1, up to $10,000 to each of the following umbrella patient advocacy groups focused on rare diseases: National Organization for Rare Disorders, Global Genes and EURORDIS (Rare Diseases Europe).
At Shire, every day is rare disease day.
While each rare disease community is small on its own, together they make one large rare disease population of patients, families and caregivers. They all need hope. With 22,000 employees and one of the largest R&D portfolios focused across a broad spectrum of rare diseases, we are a champion for the hundreds of millions of people in the world affected by rare diseases, and the millions more with highly specialized conditions. Your commitment and support today are inspiring and we promise to never give up.
Join the global community of rare disease champions
“We work to be a trusted advisor and collaborator for Patient Advocacy Groups.”
– Peter O, Head of US Patient Advocacy
Building a pipeline of hope
“Through focused research and development, new therapies and drug delivery systems are being created that have the potential to improve patient experience.”
– Catherine P, Clinical Therapeutic Area Head — Medical Devices
*Estimated prevalence based on the globalgenes.org statistic of 350 million people worldwide could be living with a rare disease, which equates to one in 20 global citizens.
By following this link you will be leaving a Shire controlled website for a third party website. Please note that Shire is not responsible or liable for any third party website and the website may not be appropriate for all audiences.