Give your social network a Rare Count diagnosis

Millions of people around the world are living with a rare disease, many of whom are undiagnosed.

Discover your Rare Count and find out how many people in your life could be affected by a rare disease.

Get Your Rare Count

Shire is just accessing the number of your connections
in the profile and will not save any personal information.

Rare disease diagnosis presents challenges for physicians as well as patients. Many times symptoms may not be recognized by physicians, often resulting in delayed or misdiagnosed illnesses, which may create a medical challenge. Forty percent of patients with a rare disease are misdiagnosed more than once or diagnosis is delayed for a variety of reasons.

If only rare disease diagnosis was as easy as discovering your Rare Count.

By sharing your Rare Count on social media, you’re spreading awareness of the magnitude of rare diseases.

Due to the rare or even ultra-rare nature of these diseases, physician and public awareness may be limited. But in fact, an estimated 350 million people worldwide suffer from rare diseases — nearly one in 20 global citizens. If all the people with a rare disease lived in one country, it would be the world’s 3rd-most populous country.**

Rare Disease Day is an important opportunity for Shire to continue advancing the company’s global effort and commitment to champion underserved patient communities.

Join the global community of rare disease champions

EURORDIS: Rare Diseases Europe National Organization for Rare Disorders Global Genes: Allies in Rare Disease

Building a pipeline of hope


See how Shire is committed to making more new patients' therapies a reality every day.

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*Estimated prevalence based on the statistic of 350 million people worldwide could be living with a rare disease, which equates to one in 20 global citizens.


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