Short bowel syndrome, also known as SBS, is a rare, serious, and chronic malabsorption condition where patients are unable to absorb enough nutrients and fluids from the food they eat due to the surgical removal of a large part of the intestines. Characterized by diarrhea, dehydration and electrolyte disturbances, SBS is typically the result of chronic malabsorption following the removal of a large part of the intestines (a bowel resection).1-3
Some patients with SBS receive an ostomy, which is a surgical opening created through the skin in the belly (abdomen) for the elimination of body wastes. The amount of bowel that is removed and the function of the remaining bowel play an important role for patients affected by SBS.1, 4
Resources And Organizations
The following resources are available to provide support for disease awareness and education. Always speak with a physician or healthcare provider regarding any questions.
For US and International Residents
The following organizations and services may be a resource for information and support for patients, families, and caregivers. *
The Oley Foundation
Oley provides resources to consumers dependent on home parenteral (IV) and enteral (tube-fed) nutrition.
The IFFGD is a nonprofit organization dedicated to helping those affected by chronic digestive conditions.
PINNT† is a UK-based organization that supports patients on intravenous and naso-gastric nutrition treatment.
- Hofstetter S, Stern L, Willet J. Key issues in addressing the clinical and humanistic burden of short bowel syndrome in the US. Curr Med Res Opin. 2013;29(5).
- Short Bowel Syndrome. National Organization for Rare Disorders. https://rarediseases.org/rare-diseases/short-bowel-syndrome/. Published 2011 and 2014. Accessed Sept. 22, 2015.
Buchman AL, Scolapio J, Fryer J. AGA technical review on short bowel syndrome and intestinal transplantation. Gastroenterology 2003;124:1111–34.
*Shire provides funding to the above organizations in support of efforts that include, but are not limited to, research, education, meetings/events, and patient support.
†Registered Charity: 1157655
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