Bleeding disorders affect the blood clotting process, called coagulation. In a normal blood clotting process, blood cell platelets rush to an injured blood vessel and form a clot to slow and stop any bleeding. Bleeding disorders cause an inability to form blood clots normally, which can cause prolonged bleeding after injury, menstruation, etc. Cuts and injury are of particular concern for those living with bleeding disorders due to potential for internal bleeding and damage to joints, organs, and tissues. Bleeding disorders range in severity from mild to severe and are usually inherited, though some can be developed.1
Blood clotting most often involves blood cells known as platelets and proteins known as clotting factors. For individuals with bleeding disorders, these factors are produced at a lower level or can even be missing.1
There are several types of hemophilia, including hemophilia A, B, and acquired. According to the World Federation of Hemophilia Report on the Annual Global Survey 2014, there are an estimated identified 178,500 living with hemophilia2 and it is estimated that 1 percent of the world’s population suffers from von Willebrand disease (VWD).3
For our patient communities, we are relentless in our pursuit of a world without bleeds. Many patients with hemophilia may have a difficult path to diagnosis and access to care. We are focused on building partnerships in communities around the world to empower education, expand awareness and enable earlier diagnosis.
As we continue to focus on the future, we will diversify and push ourselves to be innovative - exploring new technologies that have the potential to transform care, such as gene therapy.
The following organizations may be a resource for information and support for patients, families, and caregivers. Always speak with a physician or healthcare provider regarding any questions.
The following resources are available to support disease awareness and education. Always speak with a physician or healthcare provider regarding any questions.
- American Society of Hematology. “For Patients: Bleeding Disorders.”
- World Federation of Hemophilia. “World Federation of Hemophilia Report on the Annual Global Survey 2014.” http://www1.wfh.org/publications/files/pdf-1627.pdf. Accessed April 20, 2016.
- World Federation of Hemophilia. http://www.wfh.org/en/page.aspx?pid=680 Accessed April 20, 2016.