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To be as brave as the people we help.

We're looking for the BRAVEST caregivers.

The Shire Brave Awards are our way to acknowledge ordinary people who give of themselves by caring for others in a meaningful, dedicated and selfless manner. Nominate a BRAVE caregiver now for their chance to win $10,000 USD.

Nominate a BRAVE caregiver now

Rare Disease Index Report

After decades of investment and research, it’s encouraging to see the immense progress that’s been made in understanding and treating rare diseases. But here’s a fundamental truth: there’s still an urgent need to fully grasp the unique set of challenges facing patients, their families and the medical professionals involved when it comes to rare diseases.